I’ve been feeling very odd – changing medications is no fun as many of you will know better than me. I have a history of either being absolutely fine and not minding ‘minor’ side effects or getting the most extreme, even life-threatening ones possible. An early experience with Duphaston that the dreadful GP refused to report lead me to be very wary of medication for nearly 20 years…

Then, for me, Citalopram has been nearly the best thing since sliced bread, and to be coming off it after 10 years was a little daunting. My lovely GP hoped Venlafaxine could help with the ‘phantom’ pain fibromyalgia creates and help me use less painkillers and maybe gain more mobility, and also as my mood has been understandably but increasingly low as the fibro has got worse, maybe help more than the maximum dose of Citalopram could. She wanted me to start before she left, and helped me by setting a smooth transition with no tapering [as recommended by consultants] and l’ve now taken Venlafaxine for 4 weeks.

At first it was fine, just a very dry mouth, but drinking extra was easy enough, though by the time l started craving ready salted crisps, it occurred to me that yes, you can drink too much… the lovely chiropractor reminded me to take care of my electrolyte balance as he could see and feel the difference when I went in this week. A friend cooked me a lovely lndian meal including dahl, which confused things a little, as legumes now give me gripey wind, so when l saw my ‘new’ GP I was clear I felt wretched, but wasn’t sure how to separate some of the symptoms out. She briskly told me it was too soon to tell [hmm, 3weeks+ ??] and would see me in early January meanwhile here’s another prescription. I left feeling disgruntled on top of feeling sea sick and on heavy ‘amplification effect’, a most disagreeable fibro symptom where you feel like all noises are TOO loud, all smells are chokingly invasive, everything is clashing with everything else…on top of sea sickness, it’s a peach…

The surgery/practice I go to is patient-centred by ethos, so I am planning to go see a different GP should this one remain brisk/ unhelpful/ dismissive when I go back, if it wasn’t heading for xmas [what, it’s still November?!] I would try to fight for another appointment, and I will definitely be more prepared to argue my corner. An inbox conversation with a friend in London really helped clarify some of what is bothering me, and luckily I went from the doctor to my therapist, so we worked on it there too.

 

Meanwhile, I have been struggling with no immediately engaging artwork around to help me focus and cope, and failing to make much at all as being too nauseous to eat enough to take the painkillers means there’s extra pain on top of all the other symptoms.

Creativity is the singing bird for me, and the tree feels very lonely without her… not all of this is because of the meds, some is because I have been ill now for 6 years and made many changes to my lifestyle, more meds, more help, more pacing, less everything else, from showers to walking, to seeing friends, all while dealing with bereavement and losing not just my allotment, but my ability to garden, and moving from being a painter to a mixed media/ fibre artist, because of damage to my collarbones. That’s a lot, and inevitably there are times when it feels like too much…but lately with the accumulated tiredness from living in a country currently run by entitled sociopaths who are draining money from democratic infrastructure like the NHS and National Insurance benefits, mostly for their own pockets, but also to fund missiles that can never be used… oh, my…that’s way too much…

Another week of feeling sea sick and resting/ lying flat and leaving my face on the floor [instead of keeping it up and smiling!] and being gloomy as all get out, has passed, and gradually the space made by letting all that gripe out has started to allow some more positive thoughts to hang around. I even managed to make some software help me [techno fool win!!] and start rebuilding my lost list of over 200 blogs/resources I used to have on my dead laptop. It has really helped, deciding that Venlafaxine is not for me and that going back to Citalopram is not perfect but will be a lot better than this, if I can also structure in some more…something? Acknowledgement of how hard chronic illness is? Not sure…

What has come to me so far is this, the affirmation that however damaged we may feel, we still have value, all the ones being Westminstered to death and painted as the problem in the media, we are treasure houses of experience and human in ways the pretenders are too frightened to acknowledge.

I’m researching around kintsugi again, and think this will be the key to a new direction or piece of work… my life/ sense of self/ sense of possibility has been shrinking and something wants to fight back…

We are strong in the broken places, we know how to live well, we know what matters, we can be the gold that illuminates…

Kintsugi

the Japanese art of repairing broken pottery with lacquer dusted or mixed with powdered gold, silver, or platinum, a method similar to the maki-e technique. As a philosophy it treats breakage and repair as part of the history of an object, rather than something to disguise. [Wikipedia]

Not only is there no attempt to hide the damage, but the repair is literally illuminated… a kind of physical expression of the spirit of mushin….Mushin is often literally translated as “no mind,” but carries connotations of fully existing within the moment, of non-attachment, of equanimity amid changing conditions. …The vicissitudes of existence over time, to which all humans are susceptible, could not be clearer than in the breaks, the knocks, and the shattering to which ceramic ware too is subject. This poignancy or aesthetic of existence has been known in Japan as mono no aware, a compassionate sensitivity, or perhaps identification with, [things] outside oneself.
— Christy Bartlett, Flickwerk: The Aesthetics of Mended Japanese Ceramics

 

 

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